A New Year Fizzle – Happy 2013 to Me

So 2013 didn’t start off with the positive bang that I had hoped for. Instead of peace, love, and joy, I got a scary potential health diagnosis and every dish I created this weekend flopped. Okay, flopped may be a strong word, but they didn’t meet my standards for sharing them on this blog.

In 2007, I was diagnosed with Fibromyalgia.  Since then, its been a long, painful road from finding doctors that understand fibro, to learning treatments for it, to adjusting my lifestyle.  Because of insurance changes when I started my new job 2 years ago, I had to switch all of my doctors. Extremely frustrating when you don’t have a medical issue to anxiety, hysterics-inducing when you do have a medical issue, especially one as challenging as Fibromyalgia.

I’ve more or less accepted the diagnosis, although at times I still kick and scream in frustration. There’s no specific treatment and there is no cure. It is what it is. Living with a chronic pain syndrome is life-changing, to say the least. Many don’t understand it or don’t believe it because on the outside, I look “fine.” Believe me, I’m far from fine. But my intention is to not complain about it because I don’t want pity. Too much pride, I suppose.

On New Year’s Eve, I had my first appointment with my new rheumatologist (my fourth). She was reading my most recent blood work and asking unusual, in-depth questions. She wanted to know if any if my other doctors had brought up some of my abnormal blood results. Some, but they brushed it off, saying it’s all just fibro and nothing more. The doctor was surprised. She proceeded to tell me that based on my results, my history, and my physical difficulties, she suspects I have rheumatoid arthritis and/or lupus. What? Seriously? And no other doctor ever bothered to investigate further?

Those are much more serious diagnoses than fibromyalgia. NOT what I wanted to hear beginning the new year. It’s not definitive yet. I have three pages of lab orders that I have to get done, more doctor appointments, and so on. I’m praying it’s “only fibro.” Never thought I’d say that!

I’m trying to stay positive and focus on good things.

As for the less than stellar new year beginning, I’ll take it in stride. Why borrow worries for things yet undetermined and unseen? So to cheer me up, tell me what you cooked and how you celebrated the New Year!

P.S. If you have any questions about fibromyalgia, lupus, or rheumatoid arthritis, feel free to ask! If I don’t know the answer, I’ll find it out for you. Or share your thoughts!

Happy New Year, my friends!

5 thoughts on “A New Year Fizzle – Happy 2013 to Me

    1. Hi Rebecca! Thanks for your thoughts and concern. We’ll see what the tests bring, but until then, I’m refusing to let it get me down. No point in worrying about something that isn’t definite, yet. I’m sorry to hear that you had health issues as well! 😦 I hope things are better for you.

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  1. Wow, Kat, that really sucks. I hope everything goes okay and it turns out to be just fibro and not something more. I’ve gone through some medical problems myself (nothing like what you’re going through — I just have an arrhythmia) but I can attest to the fact that dealing with doctors/health care is the most frustrating thing in the whole world. It’s really disheartening to feel like your health and well being is not a priority to anyone but you. Hang in there and keep advocating for yourself — it sounds like even though the prognosis wasn’t great, you have finally found a good doctor! That’s a positive for sure. Happy New Year!

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    1. Hi Shannon! It does make things challenging, but I’m trying to take it all in stride. One day at a time is the best I can do right now. Arrhythmia’s can be serious – my mom has one, too, and takes daily medication for it. The health care world is extremely frustrating, disappointing, and difficult to navigate. I have felt dismissed by several doctors in the past, but finally feel like I’m being heard. Thanks for the thoughts and New Year’s wishes! Happy New Year to you, too!

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